Who I Am

I am a human service professional who has worked for over forty years helping children, their families and the professionals who work with them. I’ve learned that it takes conscious and purposeful effort to stay focused on the ideals and values that led to the creation of a human service organization, especially when there is pressure to grow in size and raise more money. I am particularly interested in how families learn about, access and receive meaningful services from competent professionals, organizations and institutions. This interest led to my leading role in the formation and success of a nationwide network of clinics for a genetic disease organization.

The needs of families and the professionals who serve them are often different, but the gap can be bridged. Organizations can grow without compromising their values. My career and experience have provided me the opportunity to understand the challenges and find the solutions. I’d like to share that knowledge with you.

Robert M. Miller


As your consultant, here are a few of the things I will provide:

  • The identification (or re-identification) of your organization’s core values, purpose, mission and goals.
  • As needed, the identification of new values and other possible changes to the role of the organization.
  • The solid connecting of your organization’s values and mission to its practices.
  • The identification of growth opportunities that are compatible with your organization’s values and mission.
  • The creation of an organizational touchstone (document) that will help keep the board and staff focused on the human values in your organization.

How will we work together?

My consulting relationship with you will be custom-tailored to meet your needs, schedule and budget. Once we come to an agreement, you can count on:

  • My full engagement with the stakeholders we collaboratively identify, be they clients/patients, their extended family members, staff, board members, donors, representatives from relevant industries, scientists, clinicians or others.
  • My listening, checking in and double-checking to ensure that all voices are heard and that I fully understand your needs.

I will also provide unlimited telephone follow-up consultation for one year at no additional cost.

Take advantage of my career! Using our shared knowledge and experiences, let’s plan the future of your organization and ensure that the values which inspired its creation live on!


Other Available Services

– Organizational “Readiness” or Service Delivery Audits
– Strategic Planning
– Mission and Vision Statement Development
– Meeting Facilitation
– Staffing as Interim Executive Director or CEO
– Individual Staff Mentoring
– Special Projects


Background & Major Accomplishments

Beginning in the 1970’s, I worked directly with children with a variety of special needs ranging from disabilities such as autism or Down Syndrome, to rare neurodevelopmental and genetic diseases. I also worked with children with significant mental health and/or behavioral needs, often resulting from abuse and neglect. In the 1980’s and 1990’s I served in a variety of coordinator positions before becoming executive director of a county-wide, early intervention treatment program. From 1999 through 2013 I served as the executive director of the National Fragile X Foundation. During that period the organization grew from one paid employee (me) to a paid staff and team of thirteen, and its revenues increased eight-fold. Under my leadership the organization held seven acclaimed international conferences and broadened its parent support network to nearly every state. Its legislative advocacy efforts began early in my tenure, including an annual advocacy day on Capitol Hill. I also co-founded the Collaboration to Promote Self-Determination (CPSD), a DC-based advocacy group that works on behalf of adults with an intellectual disability. In 2006 I co-founded the Fragile X Clinical & Research Consortium (FXCRC), which is now comprised of over twenty-five medical institutions providing comprehensive evaluation and treatment recommendations, and it has been the recipient of two multi-year CDC grants. Finally, I was privileged to play a guiding role in the formation of the Fragile X Society-India and the Colombian Fragile X Association while also providing advice to numerous other international groups including, in 2015, speaking to parents and professionals at an autism conference in Iran.

For a copy of my professional vitae, please contact me.